the drama king

I'm coming to terms that my little man is just going to be dramatic.  For the past month, since I was 36 weeks pregnant and had preterm labor, this little guy has been determined to be noticed.  The funny thing is, when he is awake, he is the most chill baby ever.  So far, we haven't had lots of crying and not being calmed.  He doesn't like to sleep at night, but we're working on that. 

However, his little body hasn't quite figured out how to work.  On 3/7, his first full day of life, we had to call the doctor back because his circumcision was bleeding and the nurses couldn't get it to stop.  Then, we had the same issue just a little more subdued after his PKU.  Finally, his circumcision has still been oozing blood on a daily basis.  Put all of these things together, and the pediatrician wanted us to go get blood work done to rule out some blood disorders such as hemophilia.  We had to go through the ER at Johns Hopkins b/c that is where they would get the results the fastest and that is where the pediatric Hematologist works. So, at 6:00 last night, after a very dramatic turn over for A., we headed into Baltimore.  The hematologist knew we were coming so we were taken back very quickly.  They gave the little guy an IV to draw blood, platelets, etc. and then we waited and waited for results.  Finally, after midnight, they had ruled out the serious diseases and sent us home.  The doctor called us back tonight and said that K. does have slow blood clotting and she is pretty sure that it is something called Von Willenbrands disease.  We will get the final diagnosis/ confirmation tomorrow.  So, Von Willenbrands disease is pretty common, 1/100 people, and may be even more common b/c people are undiagnosed.  It really isn't a big deal, Mr. Von Willenbrand just wanted to name it after himself when he discovered it in the 1920's so called it a disease.  Pretty much, we'll have to let the dentist know if he has any dental work done, if he has surgery, he'll go in a little early to have extra fluids and something to help with clotting.  Finally, we should have some gauze at home instead of just band aids b/c it will take longer to stop cuts.  My husband is 30 yrs old and never been in an ER.  K. made it 2 weeks.  Hopefully, this is the end of the drama!!!

ER story--  upon entering the triage, they had to take Kaleb's temperature.  Of course, since he's so little, they did it rectally.  Brandon was sitting about 2 feet away and after they took out the thermometer, Kaleb projectile pooped onto Brandon's leg.  For the next 6 hours, Brandon was sitting in poopy pants.  I'm still laughing!!!

Here is a pic of my pathetic little man in a HUGE hospital bed with his IV...